Bruna B.
For those who don’t know her, she is Bruna! For many years we had prayed to God for our little girl, and He granted us this little miracle. Sadly, when she was 3 months old, she began to have convulsions, a small “cyst” was detected in her brain that was later identified as a brain tumor (cancer/Ganglioglioma).
When she was just 4 months old, she underwent surgery in Buenos Aires, Argentina. Before she was 1 year old, the tumor grew 3 times its size. In the midst of a pandemic with all borders closed, God put angels on our path that brought us to the best place for her, Nicklaus Children’s Hospital. When she was 1 year old, she already had a second surgery! The following month she would undergo her third surgery.
At 1 year and 2 months old, she started chemotherapy, not the conventional one, but oral, an experimental medicine that allowed her to have fewer side effects. Despite everything, she has had the best medical team giving her all kinds of support that can be imagined. She was truly blessed because God put incredible people in her path at all times who have helped us make all this more bearable. She has had two years of chemo with many good and bad days.
Today, Bruna rang the little bell that says “my chemo is over'' and we thank God and all those who have been here these two years and 11 months of her hard battle.
I know we still have a long way to go. I know we still have to be alert. There are still monthly check-ups, but I know that God is taking care of her and giving her everything she needs to follow her path in the best possible way.
Thank you all for joining us in the way you have been able to. Bruna is incredible! You can’t even imagine how strong, brave, and loved she is...and everything she has taught me in these short 3 years of life.
Update May, 2023:
Today was another day of hospital, although to be honest I was a little sad this time because Bruna has had a small inconvenience with the port she has implanted in her chest, apparently it is damaged and that has been causing her some discomfort... very painful for her, she broke my heart because she always goes with the best attitude but this time it was not so easy "help mom, help, it hurts" were her words between tears and pain and my powerlessness of not being able to do anything to relieve her when she sought support on her mama made me feel even worse ..
The other sad part of these hospital experiences is seeing so many children with problems, some more serious than others, Bruna received a "little gift" from a foundation that was created by a 12 year old girl who battled cancer, @jessiereesfoundation that in her message she said she wanted to spread hope, joy and love to the children who were battling just like her and to NEVER GIVE UP!!! sadly she couldn't get out of this one but her message is travelling through a lot of hospitals giving a smile to our brave little heroes... My heart felt really tight this time, but hey, it's what we got..
I always try to rescue the kind side of this fight, there are few times that I allow this to put me down, to the point that even those around us may think that the fight is less difficult than it seems, but only my mom heart knows how hard What is to see my beloved princess at only 3 years old, shedding tears of pain, asking with her little eyes not to leave her alone, to rescue her in these moments... Thank god Bruna has amazing resilience!!! And it recharges my batteries... Leaving the exam and distracted with everything they do for her, to make her day more bearable, she finished her day telling me "Mom today I'm happy, I love you so much!!! I have an incredible princess!